Living with Spinal Muscular Atrophy

If you, or one of your loved ones, is diagnosed with spinal muscular atrophy (SMA), you might be wondering how this will impact your future.

To get through this difficult time, you need to understand what SMA is, and how you can cope.

What is spinal muscular atrophy?

SMA is a genetic condition that weakens the muscles over time, which causes issues with mobility.

It is classified as a motor neurone disease and affects the central nervous system, peripheral nervous system, as well as voluntary muscle movement.

There are several different types of SMAs, some of which develop during childhood and can be very severe. However, spinal muscular atrophy can develop in adulthood as well.

The symptoms will vary between types. But, according to the NHS, the most common symptoms include:

  • Weak arms or legs
  • Issues with movement
  • Muscle tremors
  • Bone and joint problems
  • Difficulties with swallowing and breathing

What support is available?

Unfortunately, there is currently no cure for SMA, so treatments focus on managing symptoms and maximising quality of life.

The needs of you, or your loved one, will change as the condition develops, meaning the support must adapt alongside this.

At Synergy Complex Care, our specialist carers build a personalised care plan that focuses on individuals’ well-being, as well as the physical care that they need.

We recognise the importance of maintaining as much independence as possible.

To do this, we find ways to help with everyday tasks and make suggestions about how things can be improved, such as mobility at home.

Do you or one of your loved ones need support? Contact our team today.

Posted in Spinal Injury.