For parents and carers of children with complex needs, getting the right support is incredibly important.
Caring for a baby, child, or young person with long-term illnesses or disabilities can be a full-time job, even with the support of family and friends.
Leaning on the help and care provided by professional complex care teams can have a positive impact on the whole family. From providing respite to everyday support, we ensure that your family gets the support they need.
Support from diagnosis
Receiving a diagnosis for a complex condition can be incredibly overwhelming for families. It often comes with mixed emotions; the relief of understanding what is happening is often coupled with anxiety about what the diagnosis means.
Getting support from the beginning is vital. Whilst your child’s healthcare professionals will be able to point you in the right direction, it may also help to seek out support from:
- Charities specialising in your child’s complex condition
- Support groups of other parents who are carers
- Specialist carers who are familiar with your child’s complex needs
Getting the right support early not only ensures that families don’t get overwhelmed, but also ensures that your child is having their needs met.
Respite care
If you or your family members are feeling overwhelmed by caring for your child, you can look into respite care. These short breaks can be organised by your healthcare professionals or social workers.
They ensure that carers are on hand to provide the care, support, and attention that your child needs whilst you take anywhere from a few hours to a couple of days to focus on yourself.
Whilst it can seem difficult to step away, letting yourself get too stressed or burned out can have a negative impact on your own health and wellbeing, as well as affecting the care you provide for your child.
Having the right breaks allows you to reset and be ready to provide the care, support, and love that your child needs.
Everyday support
In most cases, children with complex needs will need care at home.
This means that parents and other family members are often primarily responsible for ensuring that their child has all their needs met. This includes medication, personal care, and more.
Whilst many parents may look to handle this themselves, you should know that help is readily available.
Complex care nurses work alongside you, your child, their healthcare professionals and your whole family to develop a care plan that takes care of all of you. This includes encouraging independence for your child where possible through support both in and out of the home.
From supporting social skills for children with complex needs to providing educational support, our staff ensure that your child has a fulfilling and independent life where all their needs are met.
If you would like to find out more about our services, please get in touch with our team today.