Caring for a loved one with locked-in syndrome: What do you need to know?

At Synergy Complex Care, we understand that caring for a loved one with locked-in syndrome presents unique challenges.

If you are worried about how you can support your loved one, we’re here to help.

Understanding locked-in syndrome

Locked-in syndrome is a rare neurological condition in which a person is fully conscious and aware, but completely paralysed and unable to speak.

Patients can usually move their eyes and may communicate through blinking.

Causes of locked-in syndrome include brainstem stroke, traumatic brain injury, infections, tumours, and neurodegenerative diseases.

Important elements of care

These are some of the key issues when it comes to providing care to individuals with locked-in syndrome:

· Communication: Establishing a reliable method of communication is crucial. Assistive technologies, such as eye-tracking systems, can help your loved one express their needs and feelings.

· Medical support: Regular check-ups and prompt management of medical issues are essential. We can work closely with healthcare professionals to ensure your loved one receives the best possible care.

· Physical therapy: Engaging in gentle physical therapy can prevent complications, such as pressure sores or joint stiffness.

· Emotional well-being: Providing emotional support to your loved one is vital. Encourage open conversations and consider seeking counselling or support groups for both you and your loved one.

How we can help

At Synergy Complex Care, our experienced carers are trained to support individuals with locked-in syndrome and their families.

We offer personalised care plans centred around your loved one’s individual needs. With our support you’ll be able to relax knowing that we’ll always be there when you need us.

If you need help taking care of a loved one with locked-in syndrome, we can help you – contact us today for more information.

Posted in General.